Data Privacy 101: Subtle Art of Breaking Data Silos

Image courtesy: andertoons.com

Do you collect patient data? Do you interact with patients? This course is for you.

Patient Data is one of the most valuable behind nation's state secrets. Patients entrust you with their data assuming you will keep them safe and secure. You have the obligation to follow privacy laws and regulations of every country where your patients are from. You have to not only understand HIPAA/GDPR laws, but also stay up-to-date with the latest IT security best practices to safeguard data.

This course will give you a simple and actionable cheatsheet to understand privacy laws, implement data protection systems and share data with researchers in a compliant manner.

Why should I care about Data Privacy?

Because non-compliance could damage your organization's reputation. All the years of advocacy, marketing, blood, sweat and tears that went into making patients trust your organization will be wiped instantly if they realize their data was stolen or handled inappropriately.

Who is the instructor?

Sanath Ramesh is the instructor for this course. He has built a privacy-preserving data exchange technology from ground-up for his company CuresDev to break data silos in rare disease. He has interacted with 100s of patient organizations and personally understand their challenges. He has worked with lawyers, data protection officers, privacy & compliance officers at public companies like at Amazon and Oscar Health. He understands HIPAA/GDPR privacy laws and the controls necessary to keep the data compliant.

What is the course format?

• 2 live sessions, 1.5 hr each via Zoom with guest lectures
• Access to Course Wiki
• Exclusive access to learn-at-your-pace deep dive videos

When is the course?

March 4th and 7th from 4 - 5.30pm PST / 7 - 8.30pm EST

What will I learn in this course?

• What is and isn't Patient Data?
• What is PHI, PII, De-Identified Data and why should you care?
• Privacy laws 101 as applicable to your organization: HIPAA, GDPR, California Privacy law etc
• What is difference between Privacy vs Security vs Compliance?
  • How to pull Security levers to enforce privacy?
• How can I share data with...
  • Researchers
  • Clinicians
  • Biotech companies
  • Patients
  • Other organizations
• How to evaluate security & privacy of data platforms?
  • For IRB Approved studies
  • For collecting patient data on web-forms
  • For Medical Records
• Guest Lectures from experts